Collaborative Parent Involvement Scale


Type 1 diabetes is a common, and chronic, pediatric disease. As onset typically occurs during late childhood or early adolescence, parents must play a significant role in managing the diabetes, and the associated diabetes regimen, while children begin to assume greater responsibility for the management of their diabetes as they get older. Declines in adherence to diabetes management are associated with the transition between parent-management and child-management. Continued parental involvement, in a supportive, constructive manner, can reduce the likelihood of diabetes mismanagement. The Collaborative Parent Involvement Scale was constructed as a measure of the child’s perception of their parents involvement in their diabetes management. Nansel and colleagues (2009) designed this instrument as a youth-report, rather than parent-report, to reduce the possibility of social desirability bias in responses. The scale is composed of 12 items, each rated on a five-point Likert scale, from almost never to always. The scale examines parents’ use of problem solving techniques, use of teachable moments, their ability to tailor the assistance provided to child’s needs and capability for autonomy, and an awareness of their child’s behaviour when they are not around. Nansel et al. (2009) found that scores on the measure were correlated with parenting style, quality of life, adherence to the diabetes regiment, and glycemic control. Thus, the measure may provide useful information for the provision of support services or parental intervention.


Nansel et al. (2009) evaluated the psychometric properties of the scale.

Author of Tool:

Nansel, Rovner, Haynie, Iannotti, Simons-Morton, Wysocki, Anderson, Weissberg-Benchell, & Laffel

Key references:

Nansel, T. R., Rovner, A. J., Haynie, D., Iannotti, R. J., Simons-Morton, B., Wysocki, T., … & Laffel, L. (2009). Development and validation of the collaborative parent involvement scale for youths with type 1 diabetes. Journal of Pediatric Psychology34, 30-40. 

Primary use / Purpose:

The Collaborative Parent Involvement Scale was designed as a youth-report measure of collaborative parent involvement in type 1 diabetes management.

Collaborative Parent Involvement Scale


I have a parent who…


Almost NeverSometimesOftenAlmost AlwaysAlways
1. Helps me plan my diabetes care to fit my schedule.ƒÒ
2. Knows when I need a little extra help with my diabetes.ƒÒ
3. Helps me figure out how to change my insulin or eating to fit the amount I exercise.ƒÒ
4. Helps me out when I am too tired or stressed to take care of my diabetes on my own.ƒÒ
5. Knows what things are hard for me in taking care of my diabetes.ƒÒ
6. Helps me learn how to take care of troubles I have with my diabetes.ƒÒ
7. Knows when to let me do more to take care of myself and my diabetes.ƒÒ
8. Helps me plan how to spend time with my friends and still take good care of my diabetes.ƒÒ
9. Talks with me about how to adjust (change) my insulin, eating, and exercise.ƒÒ
10. Helps me with my diabetes when I need it.ƒÒ
11. Helps me take care of any problems I am having at school with taking care of my diabetes.ƒÒ
12. Knows how I am taking care of my diabetes when I am with friends.ƒÒ