Below is a list of items that might describe your Child’s Appearance
1. Puffiness of my child
1. 2.Color changes in my child (Pale‚ blue or yellow)
2. Child appearing Cold
Below is a list of Sights and Sounds in an intensive care unit.
1. Seeing the heart on the monitors
2. The sound of monitors and equipment
3. The other sick children in the room
4. The sudden sounds of monitor alarms
Below is a list of Procedures that may have been done to your child.
1. Tubes in my child
2. Suctioning
3. Putting needles in my child for fluids‚ procedures or tests
4. Making my child cough and deep breath/pounding and clapping on my child’s chest
5. Injections/ shots
6. Bruises‚ cuts‚ incisions on my child
Below is a list of items that relate to how Professional staff (doctors and nurses) may Communicate with you about your child’s illness.
1. Explaining things too fast
2. Using words I don’t understand
3. Telling me different (conflicting) things about my child’s condition
4. Not telling me what is definitely wrong with my child
5. Not talking to me enough
Below is a list of Behaviors and emotional responses that your child may have exhibited while in the intensive care unit.
1. Confusion
2. Rebellious or uncooperative behavior
3. Crying or whining
4. Demanding
5. Acting or looking as if in pain
6. Restlessness
7. Inability to talk or cry
8. Fright
9. Anger
10.Sadness or Depression
Below is a list of Behaviors of the professional staff (doctors and nurses) that you may have observed.
1. Joking‚ laughing‚ or talking loudly
2. Not talking to me enough
3. Too many different people (doctors‚ nurses‚ staff) talking to me
4. Not telling me names or who they are
These items related to Parental Roles
1. Not taking care of my child my self
2. Not being able to visit my child when I wanted
3. Not being able to be with my crying child
4. Not being able to hold my child
5. Using the same rating scale‚ how stressful‚ in general‚ has the total intensive care unit experience been for you?
0 = Not experienced‚ 1 = Not stressful‚ 2 = Minimally stressful‚ 3 = Moderately stressful‚ 4 = Very stressful‚ 5 = Extremely stressful
This instrument can be found at: https://etd.ohiolink.edu/rws_etd/document/get/case1152694720/inline
Carter‚ M. C.‚ & Miles‚ M. S. (1982). Parental stressor scale: Pediatric ICU (Abstract). Nursing Research‚ 31(121).
Carter‚ M. C.‚ & Miles‚ M. S. (1983). Parental Stressor Scale: Pediatric Intensive Care Unit.
Carter‚ M. C.‚ & Miles‚ M. S. (1989). The Parental Stressor Scale: Pediatric Intensive Care Unit. Maternal Child Nursing Journal‚ 18(3)‚ 187-198.
Huckabay‚ L. M.‚ & Tilem-Kessler‚ D. (1999). Patterns of parental stress in PICU emergency admission. Dimensions of Critical Care Nursing‚ 18(2)‚ 36-42.
Saied‚ Hala. (2006). Stress‚ Coping‚ Social Support and Adjustment among Families Of CHD Children in PICU after Heart Surgery. Case Western Reserve University. Doctoral Dissertation.