Community Personal Needs Assessment Questionnaire

Abstract

The Community Personal Needs Assessment (NEEDS) Questionnaire (Sapuppo et al., 2023) is a self-assessment instrument designed to identify unmet needs among young stroke survivors. This 175-item questionnaire was developed through a comprehensive literature review, incorporating insights from prior unmet needs assessments. It aims to cater to stroke survivors aged 18-55, at least two months post-stroke, and residing in the community. The questionnaire assesses seven domains: Healthcare Experience, Impairments from Stroke, Everyday Activities, Work or Study, Finances, Relationships, and Social Participation. Participants respond with yes/no to indicate an unmet need and then rate its significance on a six-point Likert scale.

Keywords

Needs, Stroke, Self-Assessment, Cerebrovascular Accidents, Needs Assessment, Neuropsychological Assessment

Authors

Sapuppo, David; Bernhardt, Julie; Carvalho, Lilian B.; Churilov, Leonid; Thijs, Vincent

Purpose

The primary purpose of the NEEDS Questionnaire is to serve as a self-assessment tool for young stroke survivors, specifically those aged 18-55 years old who are at least two months post-stroke and living within the community. Its objective is to help identify and quantify personal needs that these individuals perceive as unmet.

Validity

No data is Available.

Reliability

No data is Available.

Factor Analysis

No data is Available.

Instrument

Test Type

Original Inventory/Questionnaire.

Format

The NEEDS Questionnaire is administered electronically. It includes demographic questions followed by 175 items organized into seven domains:

• Healthcare Experience: Questions 6 to 39

• Impairments from Stroke: Questions 40 to 80

• Everyday Activities: Questions 81 to 94

• Work or Study: Questions 95 to 116

• Finances: Questions 117 to 124

• Relationships: Questions 125 to 137

• Social Participation: Questions 138 to 146

For each item, participants answer yes/no to indicate the presence of an unmet need. If an unmet need is identified, they then rate its significance using a six-point Likert scale, where 1 represents “not significant” and 6 represents “highly significant.” In some instances, additional questions are posed to further explore the factors contributing to an unmet need.

Language Available

English.

Population Group

Human; Male; Female.

Age Group

Adulthood (18 years & older), including Young Adulthood (18-29 years), Thirties (30-39 years), and Middle Age (40-64 years).

Population Details

The target respondents are young community-living stroke survivors. The instrument was evaluated in a sample of participants aged 18–55 at the time of their stroke, located in Australia.

Test Methodology

The instrument employs a self-assessment questionnaire format, allowing individuals to report their own perceptions of unmet needs.

Keywords

Needs, Stroke, Self-Assessment.

Authors

• Sapuppo, David:

  • Affiliation: Austin Health, Neurology Department

• Bernhardt, Julie:

  • ORCID Identifier: http://orcid.org/0000-0002-2787-8484

  • Affiliation: Florey Institute of Neuroscience and Mental Health, Stroke Division

• Carvalho, Lilian B.:

  • Affiliation: Florey Institute of Neuroscience and Mental Health, Stroke Division

• Churilov, Leonid:

  • Affiliation: University of Melbourne, Melbourne Medical School Department of Medicine (Austin Health) and Melbourne Brain Centre at Royal Melbourne Hospital

• Thijs, Vincent:

  • ORCID Identifier: http://orcid.org/0000-0002-6614-8417

  • Affiliation: Austin Health, Neurology Department

  • Email address: [email protected]

  • Correspondence Address: Austin Health, Neurology Department, Melbourne, Victoria, Australia, [email protected]

Permissions & Fee and Test Year

• Permissions: Contact Corresponding Author

• Fee: No

• Commercial: No

• Test Year: 2023

References

Sapuppo, D., Bernhardt, J., Carvalho, L. B., Churilov, L., & Thijs, V. (2023). Self-evaluation of personal needs by community-living young stroke survivors using an online English language questionnaire. Disability and Rehabilitation: An International, Multidisciplinary Journal, 45(11), 1830–1835. https://doi.org/10.1080/09638288.2022.2076935

Items of the NEEDS Questionnaire

The NEEDS Questionnaire consists of 175 items. These items are distributed across seven distinct domains to comprehensively assess various aspects of unmet needs experienced by young stroke survivors. The domains and their corresponding item ranges are:

• Healthcare Experience: Questions 6 to 39

• Impairments from Stroke: Questions 40 to 80

• Everyday Activities: Questions 81 to 94

• Work or Study: Questions 95 to 116

• Finances: Questions 117 to 124

• Relationships: Questions 125 to 137

• Social Participation: Questions 138 to 146