Alzheimer’s disease related quality of life (ADRQL)

A. Those statements are about relating to and being around other people.
1.    He/She smiles or laughs when around other people
2.    He/She does not pay attention to the presence of others
3.    He/She will stay around other people
4.    He/She seeks contact with others by greeting people or joining in conversations
5.    He/She talks with people
6.    He/She touches or allows touching such as handshakes‚ hugs‚ kisses‚ pats
7.    He/She can be comforted or reassured by others
8.    He/She reacts with pleasure to pets or small children
9.    He/She smiles or laughs or is cheerful.
10.He/She shows delight
11.He/She shows a sense of humor
12.He/She sits quietly and appears to enjoy the activity of others even though he/she is notactive participating
B. These statements are about a person’s special identity and important relationships.
1.    He/She talks about or still does things related to his/her previous work or daily activities
2.    He/She is aware of his/her place in the family such as being a husband/wife‚ parent‚ or grandparent
3.    He/She makes or indicates choices in routine daily activities such as what to wear‚ what to eat‚ or where to sit.
4.    He/She shows interest in events‚ places or habits from his/her past such as old friends‚ former residences‚ churchor prayer.
5.    He/She does not respond to his/her own name
6.    He/She does not express beliefs or attitudes that he/she always had.
7.    He/She talks with people on the telephone.
8.    He/She gets enjoyment from or is calmed by his/her possessions or belongings
C. These statements are about different types of behavior in the last 2 weeks.
1.    He/She squeezes‚ twists‚ or wrings his/her hands
2.    He/She throws‚ hits‚ kicks‚ or bangs objects.
3.    He/She calls out or yells or curses or makes accusations
4.    He/She locks or barricades himself/herself in his/her room/house/apartment
5.    He/She is irritable or easily angered
6.    He/She cries‚ wails‚ or frowns
7.    He/She is restless and wound up‚ or repeats actions such as rocking‚ pacing‚ banging against walls
8.    He/She resists help in different ways such as with dressing‚ eating or bathing‚ or by refusing to move.
9.    He/She appears to be content or satisfied.
10.He/She becomes upset or angry when approached by another person.
11.He/She pushes‚ grabs‚ or hits people
12.He/She is upset or unsettled in his/her living environment.
D. These statements are about usual activities in the last 2 weeks.
1.    He/She enjoys doing activities alone such as listening to music or watching TV
2.    He/She does not take part in activities he/she used to enjoy‚ even when encouraged to take part
3.    He/She shows no signs of pleasure or enjoyment when taking part in leisure activities or recreation
4.    He/She dozes off or does nothing most of the time
E. These statements are about behavior in a person’s living environment in the last 2 weeks.
1.    He/She talks about feeling unsafe or says his/her belongings are not safe
2.    He/She is upset or unsettled when in places other than where he/she lives
3.    He/She talks about wanting to leave or go home
4.    He/She says he/she wants to die
Social Interaction‚ Awareness of Self‚ Feelings and Mood‚ Enjoyment of Activities‚ Response to Surroundings
If you wish to use the ADRQL research instrument‚ please email Betty Black‚Ph.D. at [email protected]

Rabins‚ P. V.‚ Kasper‚ J. D.‚ Kleinman‚ L.‚ Black‚ B. S.‚ & Patrick‚ D. L. (1999). Concepts and methods in the development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer disease. Journal of Mental Health and Aging‚ 5‚ 33-48.

Kasper‚ J. D.‚ Black‚ B. S.‚ Shore‚ A. D.‚ & Rabins‚ P. V. (2009). Evaluation of the validity and reliability of the Alzheimer’s disease related quality of life (ADRQL) assessment instrument. Alzheimer Disease and Associated Disorders‚ 23‚ 275-284.

Shroff‚ Havovi B. (2014). Family Resiliency‚ Sense of Coherence‚ Social Support and Psychosocial Interventions: Reducing Caregiver Burden and Determining the Quality of Life in Persons with Alzheimer’s Disease. Florida Atlantic University‚ Doctoral Dissertation.