Experience of burden
1. Do you feel that your relative asks for more help than he or she needs?
2. Do you feel that because of the time you spend with your relative‚ you do not have enough time for yourself?
3. Do you feel stressed between caring for your relative and trying to meet other responsibilities for your family or work?
4. Do you feel embarrassed over your relative's behavior?
5. Do you feel angry when you are around your relative?
6. Do you feel that your relative currently affects your relationship with other family members or friends in a negative way?
7. Are you afraid about what the future holds for your relative?
8. Do you feel your relative is dependent on you?
9. Do you feel strained when you are around your relative?
10.Do you feel your health has suffered because of your involvement with your relative?
11.Do you feel that you do not have as much privacy as you would like‚ because of your relative?
12.Do you feel that your social life has suffered because you are caring for your relative?
13.Do you feel uncomfortable about having friends over‚ because of your relative?
14.Do you feel that your relative seems to expect you to take care of him or her‚ as if you were the only one he or she could depend on?
15.Do you feel that you do not have enough money to care for your relative‚ in addition to the rest of your expenses?
16.Do you feel that you will be unable to take care of your relative much longer)
17.Do you feel you have lost control of your life since your relative's illness?
18.Do you wish you could just leave the care of your relative to someone else?
19.Do you feel uncertain about what to do about your relative?
20.Do you feel you should be doing more for your relative?
21.Do you feel you could do a better job in caring for your relative?
22.Overall‚ how burdened do you feel in caring for your relative?
1. Feel resentful of other relatives who could do but do not do things for my spouse.
3. Because of my involvement with my spouse‚ I don’t have enough time for myself.
4. I feel stressed between trying to give to my spouse as well as to other family responsibilities‚ job‚ etc.
5. I feel embarrassed over my spouse’s behavior.
6. I feel guilty about my interactions with my spouse.
7. I feel that I don’t do as much for my spouse as I could or should.
8. I feel angry about my interactions with my spouse.
9. I feel that in the past‚ I haven’t done as much for my spouse as I could have or should have.
10.I feel nervous or depressed about my interactions with my spouse.
11.I feel that my spouse currently affects my relationships with other family members and friends in a negative way.
12.I feel resentful about my interactions with my spouse.
13.I am afraid of what the future holds for my spouse.
14.I feel pleased about my interactions with my spouse.
15.It’s painful to watch my spouse age.
16.I feel useful in my interactions with my spouse.
17.I feel my spouse is dependent.
18.I feel strained in my interactions with my spouse.
19.I feel that my health has suffered because of my involvement with my spouse.
20.I feel that I am contributing to the well-being of my spouse.
21.I feel that the present situation with my spouse doesn’t allow me as much privacy as I like.
22.I feel that my social life has suffered because of my involvement with my spouse.
23.I wish that my spouse and I had a better relationship.
24.I feel that my spouse doesn’t appreciate what I do for him/her as much as I would like.
25.I feel uncomfortable when I have friends over.
26.I feel that my spouse tries to manipulate me.
27.I feel that my spouse seems to expect me to take care of him/her as if I were the only one he/she could depend on.
28.I feel that I don’t have enough money to support my spouse in addition to the rest of our expenses.
29.I feel that I would like to be able to provide more money to support my spouse than I am able to now.
0 = Never‚ 1 = Rarely‚ 2 = Sometimes‚ 3 = Quite frequently‚ 4 = Nearly always.
This instrument can be found at: http://www.ftlda.org/wp-content/uploads/2011/12/FTLDA-CARGIVER-BURDEN-SCALE.pdf & http://dementiapathways.ie/_filecache/edd/c3c/89-zarit_burden_interview.pdf
Zarit‚ S. H.‚ Reever‚ K. E.‚ Back-Peterson‚ J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist‚ 20‚ 649-655.