Cancer Research Recruitment Interview Guide

Abstract

The Cancer Research Recruitment Interview Guide (Norbäck et al., 2023) is a semi-structured interview guide designed to assess ethical concerns specifically regarding the recruitment of children with cancer for research. This instrument was utilized in a study involving key informants, specifically physicians and nurses. The guide consists of 13 open-ended interview items developed by the authors. Participants were prompted to share their experiences, thoughts, feelings, and perspectives related to the recruitment process, with an emphasis on describing concrete situations or examples. The interviews typically ranged from 40 to 52 minutes in duration, with a mean duration of 46 minutes. No reliability or validity results were reported for these items.

Keywords

Attitudes, Children with Cancer, Concerns, Healthcare Professionals, Research Ethics, Semi-Structured Interview

Authors

Norbäck, Kajsa; Höglund, Anna T.; Godskesen, Tove; Frygner-Holm, Sara

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Purpose

The primary purpose of this semi-structured interview guide is to thoroughly explore and describe the ethical values and challenges encountered during the recruitment of children with cancer for research. This exploration is conducted from the unique perspectives and experiences of healthcare professionals within the Swedish context.

Validity

No data is Available.

Reliability

No data is Available.

Factor Analysis

No data is Available.

Instrument

Test Type

Original

Format

Item responses are open-ended.

Language Available

English

Population Group

Human; Male; Female

Age Group

Adulthood (18 yrs & older)

Population Details

The study was conducted in Sweden. The respondents were physicians and nurses, encompassing male and female gender identities, with no specific mention of non-binary identities in the population details provided.

Test Methodology

Qualitative Assessment Methods, specifically utilizing a semi-structured interview approach.

Keywords

Bioethics, Experimental Ethics, Experimental Subjects, Health Personnel Attitudes, Experimental Recruitment, Treatment Process and Outcome Measures, Semi-Structured Interview, Health Care Personnel Measures, Childhood Neoplasms.

Authors

Author ORCID Identifier

Godskesen, Tove: http://orcid.org/0000-0001-6011-6740

Affiliation

• Norbäck, Kajsa: Department of Public Health and Caring Sciences, Centre for Research Ethics & Bioethics

• Höglund, Anna T.: Department of Public Health and Caring Sciences, Centre for Research Ethics & Bioethics

• Godskesen, Tove: Department of Public Health and Caring Sciences, Centre for Research Ethics & Bioethics

• Frygner-Holm, Sara: Department of Public Health and Caring Sciences, Centre for Research Ethics & Bioethics

Email addresses

Norbäck, Kajsa: [email protected]

Correspondence Address

Norbäck, Kajsa: Centre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Box 564, Uppsala, Sweden, SE-751 22, [email protected]

Permissions & Fee and Test Year

Permissions

May use for Research/Teaching.

Fee

No fee is required.

Test Year

2023

References

Norbäck, K., Höglund, A. T., Godskesen, T., & Frygner-Holm, S. (2023). Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals’ perceptions and experiences. BMC Medical Ethics, 24(1), Article 23. https://doi.org/10.1186/s12910-023-00901-4

Items of the Cancer Research Recruitment Interview Guide

This is a 13-item measure. The specific questions or prompts that constitute these 13 interview items are not provided in the given text. However, the items generally asked participants about their experiences, thoughts, feelings, and perspectives related to the recruitment of children with cancer for research, encouraging them to describe concrete situations/examples.

Cancer Research Recruitment Interview Guide

Items

Topic I: Invitation and Information

• What do you think is particularly important when you ask and inform children with cancer and their parents about participating in studies?

• Are there times when it feels difficult or ethically problematic to ask and inform, or when you feel unsure?

• Are there times when, on the contrary, it feels easy and convenient to ask and inform families?

Topic II: Consent and Assent

• What role do parents usually play in the decision to participate?

• How involved do children tend to be in the decision and consent process?

• How do you see your own role in the informed consent process?

• Have you ever felt that it would be ethically problematic to include a child in a study?

Topic III: Ethical Competence and Ethical Support

• What kind of particular competence, such as skills and abilities, knowledge or experience, do you think one needs to be able to recruit sick children in a good and ethical way?

• Would you say that you generally feel confident that you have the competence to handle challenging situations in your work with recruiting sick children?

• How regularly do you discuss ethical issues at your workplace? What about research ethics? Are there any obstacles to discussing ethical questions? Do you get the ethical support and guidance that you need?