Quality of Life During Serious Illness – Family Carer Version (QOLLTI-F)

A. Considering all parts of my life – physical‚ emotional‚ social‚ spiritual‚ and financial – over the past two days (48 hours) my quality of life has been:
very poor 0 1 2 3 4 5 6 7 8 9 10 excellent
1. Over the past two days (48 hours) I was satisfied with the place _____ was staying (home‚ hospital‚ other):
not at all 0 1 2 3 4 5 6 7 8 9 10 completely
2. Over the past two days (48 hours) I had the privacy I wanted:
 not at all 0 1 2 3 4 5 6 7 8 9 10 completely
3. Over the past two days (48 hours) the condition of was distressing to me:
not often 0 1 2 3 4 5 6 7 8 9 10 always
 4. Over the past two days (48 hours) the amount of control I had over my life was:
not a problem 0 1 2 3 4 5 6 7 8 9 10 a huge problem
5. Over the past two days (48 hours) I had time to take care of myself:
 never 0 1 2 3 4 5 6 7 8 9 10 always
 6. Over the past two days (48 hours) I was able to think clearly:
 not often 0 1 2 3 4 5 6 7 8 9 10 always
7. Over the past two days (48 hours) physically I felt:
 extremely poor 0 1 2 3 4 5 6 7 8 9 10 extremely  good
8. Over the past two days (48 hours) emotionally I felt:
extremely poor 0 1 2 3 4 5 6 7 8 9 10 extremely good
9. Over the past two days (48 hours) being able to provide care or company for made me feel good:
rarely or never 0 1 2 3 4 5 6 7 8 9 10 always
 
10. Over the past two days (48 hours) I was comforted by my outlook on life‚ faith‚ or spirituality:
not at all 0 1 2 3 4 5 6 7 8 9 10 completely
11. Presently I feel that my life has meaning:
very little meaning 0 1 2 3 4 5 6 7 8 9 10 very much meaning
For questions 12 and 13‚ if you did not make important decisions or need health care in the
past two (2) days‚ please answer for the last few times that you did.
12. Over the past two days (48 hours) I agreed with the way decisions were made for _____:
not at all 0 1 2 3 4 5 6 7 8 9 10 completely
13. Over the past two days (48 hours) the quality of health care we received was:
 not satisfactory 0 1 2 3 4 5 6 7 8 9 10 extremely good
14. Over the past two days (48 hours) I felt my interaction with was:
very comfortable 0 1 2 3 4 5 6 7 8 9 10 stressful
15. Over the past two days (48 hours)‚ overall‚ I felt my interaction  with the other people most important to me was:
very comfortable 0 1 2 3 4 5 6 7 8 9 10 stressful
16. Over the past two days (48 hours) my financial situation has been  stressful:
not at all 0 1 2 3 4 5 6 7 8 9 10 completely
17. Over the past two days (48 hours)‚ I was comfortable providing care:
not at all 0 1 2 3 4 5 6 7 8 9 10 completely
18. Over the past two days (48 hours) overall‚ I felt my relationships with the people most important to me made my quality of life:
much worse 0 1 2 3 4 5 6 7 8 9 10 much better
What do you most want the care team to know?
Do you want us to give this information to the team? Please circle: Yes No
 
Reverse coded # 3‚ 4‚ 14‚ 15‚ and 16 
Environment‚ Patient State‚ Carer’s own state‚ Carer’s outlook‚ Quality of care‚ Relationships‚ Financial worries
   
Environment 0.48‚ Carer’s Own State 0.81‚ Outlook 0.65‚ Quality of Care 0.71‚ Relationships0.54
 
Environment (1‚ 2)‚ Patient State (3)‚ Carer’s own state (4‚ 5‚ 6‚ 7‚ 8)‚ Carer’s outlook  (9‚ 10‚ 11)‚ Quality of care (12‚ 13)‚ Relationships (14‚ 15)‚ 7 Financial worries (16)
 
 

Cohen‚ S.R.‚ Leis‚ A.M.‚ Kuhl‚ D.‚ et al. (2006). QOLLTI-F: Measuring family carer quality of life. Palliative Medicine 20(8):755-767.

Cohen SR (2014). Quality-of-Life in Life-Threatening Illness: Family Carer Version (QOLLTI-F). IN: Michalos AC (Ed.). Encyclopedia of Quality of Life and Well-Being Research. Springer‚ Dordrecht‚ Netherlands: Springer‚ 5356-5357.

Shahidi J‚ Taghizadeh-Kermani A‚ Gohari MR‚ Ghavamnasiri MR‚ Khoshroo F‚ Pourali L‚ Cohen SR. (2014). Changes in daily activities of cancer patients after diagnosis: How do Canadian and Iranian patients perceive the change? Iranian Journal of Cancer Prevention.; 7(1):28-34.