Adult Sickle Cell Quality of Life Measurement System – Emotional Impact (ASCQ-Me)
Measures the emotional impact of sickle cell disease on an individual's quality of life over the past 7 days.
Scale Development & Technical Details
Scale Overview
The Adult Sickle Cell Quality of Life Measurement System – Emotional Impact (ASCQ-Me) was developed by National Institutes of Health (NIH) ASCQ-Me Initiative (2012). It is designed to measure Emotional Impact of Sickle Cell Disease. The scale is intended for use with Adults with sickle cell disease.
Scale Structure
This instrument consists of 20 items.
Response Format
Respondents rate each item using a custom response format.
Response anchors: 1 = Never / Not at all, 2 = Rarely / A little / A little bit, 3 = Sometimes / Somewhat, 4 = Often / Quite / Quite a bit, 5 = Always / Very / Very much.
The scale includes 18 reverse-scored items to reduce acquiescence bias.
Scoring
Items are summed to produce a total score.
Total scores range from 20 to 100. Interpretation guidelines:
- Severe Emotional Impact (Lower Quality of Life): 20 – 40
- Moderate Emotional Impact: 41 – 60
- Mild Emotional Impact: 61 – 80
- Minimal Emotional Impact (Higher Quality of Life): 81 – 100
Psychometric Properties
Internal Consistency: The scale has demonstrated good to excellent internal consistency with reported Cronbach’s alpha values of High internal consistency (Cronbach's alpha > 0.90).
Administration
The scale is self-administered and typically takes approximately 5 minutes to complete. It can be administered individually or in group settings. No special training is required for administration.